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Most rare diseases are studied in a limited number of trials, yet over 300 million patients globally are affected by a rare disease. Rare disease patients often face long diagnostic delays and limited treatment options. For many, clinical research is their only path to new therapies. The new website enables patients to identify potentially relevant research opportunities using condition-based questionnaires.
“Navigating clinical trial options can be overwhelming for rare disease patients and their families – I experienced that firsthand. Partnering with Carebox allows us to simplify that journey, helping patients feel seen, supported, and better equipped to access trials that may change their lives.”
Sarah Woods
Founder of Serenely Guided Foundation
Because of Sarah and her son’s personal diagnosis with Hereditary Hemorrhagic Telangiectasia (HHT), the Serenely Guided Foundation Clinical Trial Concierge website will add HHT, along with a variety of rare disease trials and will keep expanding.
“Our relationship with Serenely Guided Foundation reflects Carebox’s commitment to improving clinical trial access for underserved patient populations,” said Cara Bruzzi, Director of Services at Carebox Healthcare Solutions. “By adding advocacy groups, like Serenely Guided Foundation, to our network, we’re helping patients identify appropriate research treatment options as well as accelerating the availability of new treatments by improving clinical trial enrollment timelines.”
About Serenely Guided Foundation
Founded by Sarah Woods in 2023, the Serenely Guided Foundation is a 501 (c)(3) organization dedicated to improving the lives of patients, families, caregivers and those affected by rare diseases. Its focus is providing easy access to resources in the areas of wellness, nutrition, education, clinical trials, as well as creating rare disease awareness, and its mission is to help guide the patient and caregiver journey with ease. Learn more at serenelyguidedfoundation.org.
About Carebox
Carebox connects patients and physicians seeking treatment options with clinical trials. For patients and families, access to information about the newest and most advanced treatment options is obscured and frustrating to find. For pharma companies, clinical trial recruitment is the primary bottleneck in the $100B+ drug development market now being reshaped by precision medicine treatment specificity, new trial models, diversity requirements, and digital health consumer expectations. Carebox is at the forefront of addressing these challenges for patients and their families, as well as for the ecosystem of companies involved in sponsoring, running, and recruiting for clinical trials. Learn more about Carebox at careboxhealth.com.
